I am pleased to see so much media coverage recently about dementia awareness and the importance of support for the carers and family. This is a very cruel disease often stripping a loved one away beyond recognition.
Families who are bewildered by the challenge and naturally untrained to deal with the personality change in their loved ones are often left to struggle. Please, please seek help, look towards The Alzheimer’s and Dementia charities for valuable information and support.
Today we hear Barbara Windsor’s own personal fight has become public and fans will wish her and her husband well. It is a brave step but one which will raise the profile and highlight the ever increasing cases in the UK. I heard today one case is diagnosed every four minutes and of course many cases remain undiagnosed as patients put symptoms down to just the ageing process.
Here’s to all the carers out there today that give of themselves so tirelessly and devoted to those they love. It is important that partners/carers have respite and time to continue pursuits they enjoy too though many feel guilty if they do… unwarrantedly.
I have just returned from a funeral and we all take what ‘fits well’ for us from the minister’s address. What was particularly nice today was the minister knew the deceased and her family well and it was personal. What I really liked was how he reminded the bereaved that the community were there for them, and in this case it really was true. We were all there to celebrate a life and were united in that.
As I always say in life we only get out what we are prepared to put in and when people give of themselves to others it is no hardship for that kindness to be returned. During the day’s events I had some interesting discussions with various attendees; both friends and family members who openly shared their feelings about loved ones they had lost.
I had a great chat with a lovely elderly lady and we agreed how comforting it is when nice things are said…but more importantly we discussed how it is also true of telling those we love them and appreciate them when they are alive.
I often post saying tell those you love today and every day. Live your life well and as I said to one lady have that second ice-cream..especially on a hot day like today.
Having many strings to one’s bow often means that some aspects of who we are and what we do get neglected. Mine of late has been my own writing projects in terms of both marketing them and writing itself.
My regular followers and friends know that the past few years I have been a mature student and also working with dementia clients and their families which has taken me away from ‘my writing babies’. So today I am back being a writer and dusting off my manuscripts along with all the other poor tortured writers and back pitching…
At a family event this weekend I was reminded about one of my very special projects now available on Amazon. ‘A Mother’s Love’ which includes great advice from my mentor and best friend:-
After the loss of a loved one it is very hard for the bereaved to move forward and accept a new era of their life without them. For many older married couples the remaining spouse may have been a full time carer for sometime and that became their life’s role.
Speaking to a recently widowed lady I know it is not uncommon for the older generation especially to do everything together and this in itself can make it hard to venture out alone in search of new hobbies.
As with retirement many people find that they at last have time to persue the interests that previously may have been out of the question. With bereavement it is so often the case that a love one will feel an unwarranted sense of guilt to be seen to enjoy themselves.
Whatever your situation it is always a one step at a time process and regaining one’s sense of purpose takes time. For anyone recently bereaved please seek help and talk honestly to those that can offer support. Remember that you do not have to be a regular church-goer to speak to a local minister they are trained professionals and bereavement support is part of their community role.
I have had the great pleasure of working with dementia clients and their families and I am aware how difficult it is for family members to adust emotionally to the challenges this condition brings.
Discussing with family members we agree in a way it is like a mini bereavement as one watches the person we know, loved, and possibly depended on disappear in front of us.
My key advice is to seek support and make the effort to find out as much as you can to learn new ways of communicating. It helps to find small ways to react in different ways to situations to defuse rather than over react, it takes a great deal of love, patience and understanding. Bear in mind your loved one is living in a very frustrating and confusing world now and needs you more than ever.
There are of course dementia charities who have support groups locally and advice on hand to make the journey easier.
I have felt it a real privilege to work with clients with dementia and their families. Any caring profession carries a great deal of trust and as I discussed recently with a colleague staff are checked for suitability… we assume!
I am saddened and deeply so at the news today showing the filming of a carer slapping a lady with dementia who was left in her care. Where is the respect for a fellow human being and especially for somebody elderly and with such difficult challenges to face?
I am also alarmed at some of the actions of those working in nursing homes, again one assumes staff are trained to administer patience, caring and understanding under the umbrella of palliative care. For those that are vulnerable and sometimes too afraid to speak out, staff that bully and intimidate should be ashamed of themselves. If you cannot offer kindness then don’t work with the elderly.
This country really is failing our elderly – I know my generation were brought up to respect our elders – it’s a shame the government are not being more proactive in their policing of private nursing homes where it often appears that making a profit is higher up the priority than providing good care. Let’s face it the homes charge residents and their families a fortune weekly and for some families this is the only alternative when they can no longer cope with elderly parents with any disability.
Yes, I am ranting but we ignore these facts too readily…it’s just unacceptable! I acknowledge that there are some great nursing homes and dedicated staff running them but one resident being abused is one too many!